Sunday, January 25, 2015

"The Ugly Duckling," phase.

For me, breast cancer has struck at the very core of my physical-feminine attributes.  Currently, I am bald.  When all is said and done, I will have had both breasts removed as well as my ovaries and Fallopian tubes.  I am ever so grateful that I bore all 4 of our children earlier on in life.  Thus the removal of my feminine body parts is not so tragic.  At least not from a reproductive stand point.....

There is a part of me that looks forward to having my breasts GONE for all the trouble they have caused lately!  After all, they almost killed me!  Yet, they also nurtured our children as infants and gave me a strong feeling of femininity.  I definitely have mixed emotions about the upcoming surgeries.  I am scheduled for the bi-lateral mastectomy February 18th.  

These days when I look in the mirror, I have to look very hard to see any semblance of the old Shanda. I have to remind myself that this phase will pass and that the swan is lurking just below the surface waiting to make a reappearance given time.  Fortunately, God is not "looking at my clothes, He's looking at my soul!"

Wednesday, January 14, 2015

Fuzz!


What's that?  The back of my head.  I am very excited to share that I have Fuzz growing!  I didn't think I would start to see hair growing back until a month or so after I finished the Taxol.  Not sure if it is actual hair.  Different places have different textures and colors coming in.  Some hairs appear thick, coarse and dark.  Other strands appear like the fuzz new borns grow initially.  Some strands are gray.  Quite a few actually.  I didn't really have gray hair before but have been told that after chemo, when the hair does grow in, it can be completely different than before.  Color, texture etc.  My hair was so curly before, if it gets any curlier, I won't be able to get a comb through it!  Maybe it will grow in straight?  Any predictions?

Tuesday, January 13, 2015

Remember to Pray....



The Young Men and Young Women groups from our church passed these around our neighborhood tonight.  Bright spot in an otherwise difficult week.

I have had some rough days as I got sick with a nasty viral infection 10 days ago.  On day 5 the virus settled in to my sinus's and caused a major ear infection.  Ringing in the ears and overall dizziness along with a fever.  The doctor gave me a rocephin injection and then prescribed some antibiotics to take orally.  The last couple of days have been discouraging.  So to see these Lillie beauties on my doorstep, well it really lifted my spirits.  

In the mean time, several families from our Ward (church congregation) have brought dinner to us every night for the last 3 nights. Thanks to the Johnson's, Hughes, Wheeler and Ohlsen families!  

Last but certainly not least, I got a call from one of the Counselors at Maya's school and they want to donate the proceeds from an upcoming " Relay for Life," to our family.  

The support we continue to receive from our neighborhood and community through this challenging time astounds me and inspires to me to, "Just keep swimming."

Tuesday, January 6, 2015

Stuart Scott



Stuart Scott died from cancer a couple of days ago.  I wasn't a fan.  Soccer is about the only professional sport that I would be interested in watching.  That or maybe volleyball.   I don't watch any of the sport newscast shows so I didn't even know he was going through cancer treatments until he was gone.  I watched a clip of him accepting an award from ESPN.  He said, "You beat cancer by how you live."  Now.....I am a fan.  That statement really resounded with me.  I hadn't used those words to describe my philosophy or perspective on life with cancer. The closest I came to it was something like, "I want to learn to live with cancer, not die from it."  But his phrase really captured the essence of what I have felt since my diagnosis.  I want life to go on as normally as possible for me but most especially my family.  Live and do as much as I can, as much as we can in the ways that we have always done.

When I hear of someone dying from cancer, it affects me differently than it used to. I linger over the loss longer and feel compassion for the deceased and their loved ones in a way that I never used to.  It just feels more personal because of the shared experience, I guess.

Tuesday, December 23, 2014

Hindsight is 20/20

Looking back to the week of the diagnosis, I feel that I can see much more clearly many of the initial emotional reactions since I have allowed time to pass.  In the moment, it was very overwhelming and so much to handle all at once.  I think my initial reaction was one of two feelings: shock, "this is surreal, and fear.  Fear of the unknown.  Am I going to live or die?  How will my body react to chemo and radiation?  Most of the chemo and radiation stories I heard, were the scary ones.  People did not fare well and became very ill.  I have since learned that there is a whole spectrum of how people respond to chemo and radiation.  We don't hear of the people who do.  But they are out there.  The AC treatments have (so far) been the most difficult for me to handle.  Now that I am Receiving Taxol, I am doing great.  Little to no side effects!  Today I drove myself to chemo as John has been sick and we did't want to expose everyone. After 3 hours of my infusion, I dropped by the grocery store to pick up all that I would need for Christmas dinner and came home and played volleyball with Sophie, Jamison, and John.  Yes!  I felt well enough to do that! 

When I met with the "Cancer Crew," earlier on in the month, many of us compared notes as to how we handled this treatment or that treatment.  It has been different for each of us.  One friend did really with the AC treatments but dealt with some neuropathy from the Taxol.  It was the opposite for me.  I am doing better with the Taxol than I did with the AC.  There are similarities and differences but the important thing to remember is that your cancer experience will have a uniqueness all its own.  Every body is an amazing creation with its own unique characteristics, strengths, weaknesses, and responses.  And the outcome is different just as the plan Heavenly Father has for each of his children is different.  In the last month, I have known of two individuals who have passed from cancer.  Their cancer returned and they went very quickly.  Yet I meet with the "cancer Crew," and there are so many survivors.  I meet survivors all the time and some of their stories are miraculous.  Whether we stay or whether we move on, I can see how clearly God works in all our situations.  I believe That each of our cancer experiences are tailor made for each one of us and that we are having the experiences that God would see fit for us to have.

My friend Shannon, had every adverse reaction that an individual could have to chemo.  Lots of difficulty and suffering to the point that her Doctor was in tears over her situation.  She told him, "Don't feel bad.  I am having the experience that I am supposed to have."  What Faith! What strength!

Wednesday, December 17, 2014

Steroids and insomnia

Siggghhh!  The steroids that they give me as part of my pre-meds (before the chemo), make it so I can't sleep the first couple of nights after chemo.  That and gas are the two side effects that I seem to deal with most with the Taxol treatments.  Not unbearable but not pleasant either.  5th treatment complete today!  7 more to go.